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Temecula Girl Battles Rare Cancer

Allison Lysiak, who should have been months into sixth grade at Margarita Middle School in Temecula, is instead fighting what is believed to be chondrosarcoma, a rare form of bone cancer, her mother said.

She likes boy band Big Time Rush, bracelets, all types of hats, and helping people—especially young children.

Eleven-year-old Allison Lysiak of Temecula has not been able to enjoy much of that lately, however. That is because she was admitted to Loma Linda University Children’s Hospital a month ago, and it may be awhile before Allison comes home.

Allison, a sixth grader at Margarita Middle School, has been diagnosed by LLU doctors as having chondrosarcoma, according to her mother, Sheri Lysiak.

Chondrosarcoma is a type of cancer that invades bone, according to Mayoclinic.org, which reports that it typically develops in adults older than 40.

“It is extremely rare and even more rare in children,” Lysiak told Patch via phone Wednesday.

The problems started when Lysiak said she noticed a lump on Allison’s back that she thought was a cyst. The family pediatrician sent Allison for surgery to remove the cyst, Lysiak said, at about the same time she started experiencing pains in her ribs.

“An X-ray showed there was a mass tumor,” Lysiak said.

Shortly thereafter, Allison, who goes by Allie, lost her ability to walk. A second surgery repaired that, Lysiak said. That was followed by a third surgery, and Allie is facing yet a fourth soon.

Meanwhile, Lysiak, a stay-at-home mom, has been spending most of her time at the hospital—nearly an hour drive from Temecula.

On Oct. 9, Allison celebrated her 11th birthday in the hospital.

“It was a fun day and a hard day,” Lysiak said.

Some friends from school, along with family members, came to help celebrate, she said.

Allie has two siblings: Emily, who is 12, and Nathan, 5, who suffers from autism.

Lysiak and her husband, Dustin, have been splitting time between the hospital. Dustin has taken several days off work from his job at Optiforms in Temecula.

“It has been a real challenge for me and my husband; having to choose which one of our kids to spend the night with,” Lysiak said. “My mom has come from Arizona and is helping by staying a week at time.”

Temecula businesses Pizza Factory and Chick-fil-A have held benefits for Allie, and the Vail Elementary School community—where Allie attended kindergarten through fifth grade—has also been a lifesaver, Lysiak said.

The road ahead for Allie includes a surgery to replace her vertebrae, as doctors thought they removed all the cancer but found the cells were still microscopically attacking one of the main bones in her back, Lysiak said.

“This will be her third spine surgery in three weeks. Then it will be another three or four weeks recovery and from there we are undecided if we are going to do radiation and chemotherapy.” 

Lysiak said they are seeking a second opinion on Allie’s diagnosis from Memorial Sloan-Kettering Cancer Center in New York City.

Herbert Atienza, spokesperson for LLU Children's Hospital, confirmed Allie's stay but could not immediately elaborate on her condition due to privacy laws.

Allie is keeping a smile on her face through visits from her siblings and an extra-special treat from Big Time Rush of autographed T-shirts and posters.

“She misses everything: misses her friends, misses being home," her mother said.

A website documenting Allie’s plightful journey has been set up at Seealliesmile.weebly.com.

R Barrett October 18, 2012 at 09:50 PM
Sheri, please check out the Gerson Therapy @ http://gerson.org/gerpress/the-gerson-therapy/ which is headquartered in San Diego. It is a nutrition-based treatment. And, if you still decide to move ahead with traditional treatments like chemo and radiation, please know there are things your daughter can take that will help protect her organs during these treatments. Some are supplements and others are fruits and vegetable drinks. Also check out http://kriscarr.com/ to see how she overcame stage 4 cancer and has survived. I know this probably sounds way off the wall, but it won't hurt to read what they all say about it. And, sugar feeds cancer cells so please make sure she is having a very healthy diet rich in nutrients. Best to all of you!
R Barrett October 18, 2012 at 09:52 PM
To "old neighbor"... YES on everything you said. I just read it and totally agree. So glad there are others that know about this. :-)
old neighbor October 18, 2012 at 10:04 PM
Thanks for the info on the Gerson Therapy!
R Barrett October 18, 2012 at 10:07 PM
I juiced last year and could not believe the energy I had. Only raw veggie and some fruit juices, no food. My doctor was very impressed with my lab results. Its pretty amazing what that fresh, pure juice can do for you! That is the backbone of the Gerson Therapy. :-)
sheri lysiak October 19, 2012 at 12:11 AM
Thanks again for all the good info.. We are open to all kinds of treatment.. She knows that after this surgery she will be on a new diet.. we also have a friend that has alkline water so we start soon too..
R Barrett October 19, 2012 at 12:34 AM
I'm so happy to hear you will at least consider it. It just makes sense when you think about how our bodies were made to eat real food and not processed food. I hope she can avoid all the toxic treatments or at least prepare her body for those treatments if she does do that. :-)
Brenda S October 19, 2012 at 01:15 AM
I have a friend on Gearson Clinic program her markers are from over 700 down to 100 no chemo. All juicing she had stage 4 breast cancer. Prayers are with you sweet little girl.
Brenda S October 19, 2012 at 01:17 AM
Beating Cancer With Nutrition is the book I followed while going through cancer.
Sam October 19, 2012 at 02:33 AM
What awesome info about diet. Also, learn what is on the food labels if you can't say the word DON"T put it in your body. Sugar is also known as natural flavor on label. Stay away from wheat also. To much added to it The new thing is wheat and stomach issue's.
Arrowsookay October 19, 2012 at 02:45 AM
I lived in Thousand Oaks and kids ate junk and we never heard of ANY kids with cancer. Not on the news, not anyone we knew had cancer- kids getting cancer is a Temecula thing. Thousand Oaks kids they eat protein, drink soda, etc. it is the water in Temecula- check out the "Consumet Confidence Report for Rancho CA Water" - check out State of Ca - Cities with Contaminated Watet.
Andy October 19, 2012 at 04:26 AM
http://youtu.be/iksA-DD3990 http://youtu.be/XaU4st-VLV4 http://youtu.be/tmviQBB5DHs http://youtu.be/YBuWKiN3fMI http://youtu.be/ym0BSdEIjJA Medical cannabis and medical cannabis oil help cancer patients fight the pain and nausea they suffer through. Cannabis oil also has direct action on many tumors, reducing them in size over time.
Andy October 19, 2012 at 04:35 AM
Diets with a higher pH level also help, like many others are saying. Keep away from the unfiltered tap water, GMOs, junk food, over-medication, over-vaccination, etc. We are in the middle of a "cancer epidemic".
Andy October 19, 2012 at 04:45 AM
Canadian Cancer Society recommends minimum 1000 IU of Vitamin D3 a day... other research shows up to 10,000 IU for anti-cancer effects. Good organic diet of a wide assortment of raw fruits and vegetables, organic whole grains, and organic protein sources also have positive effects against cancer.
old neighbor October 19, 2012 at 05:00 PM
Not true!!!! I have lived in the Temecula area for over 26 years and I have 5 kids and 10 grandkids. No cancer in our family! And we have a well. Do you think maybe it is what the city is putting in the water for it to test safe???? (lye, clorine, floride = toxic)
old neighbor October 19, 2012 at 05:07 PM
Sheri, The alkiline water will flush the acid out of her cells. Make sure she drink enough of it. She also needs to move, walk etc. for 20 min. a day to keep the lymphaic system moving. No bottled juices, only the ones you juice yourself. My husband has a anti-cancer meal plan. email me and I can send it to you. (musclemabry2@gmail.com) God Bless!
SPB October 19, 2012 at 05:20 PM
There is a lot of good advice here! Good luck Sheri to you and your family. I grew up in Temecula and am a survivor of stage 4 hodgkins. One of my good friends growing up who lived a few houses down passed from non-hodgkins. Something is definitely up in this town. I'm curious to see if Temecula has higher cancer rates amongst young people than the national and state averages. Also, a vegan diet is the best thing for someone fighting cancer. All refined sugars need to go as well. Chemo and radiation work, but they punish your body in ways someone who hasn't experienced them cannot fathom. The best way to augment the treatment is to starve the tumors of their food source (sugar) and to restore the alkalinity to the system. Additionally, I took a juice supplement called tahitian noni. It was excellent at removing the chemo from my system and helping me recover. And yes, while she is young and its a controversial subject, medical marijuana enabled me to eat during chemo. The anti-nausea pills didn't work and all the folk remedies were disappointments. Pot turned off my nausea like a light switch. It takes a few times smoking (or eating it) for the system to figure it out, but once it gets workin, it works!
old neighbor October 19, 2012 at 05:43 PM
The high alkiline water will do the same as pot. The pot will cause more acid in the body which a cancer patient would want to avoid. Go to Henry's, they have the best price on a supplement we suggest for cancer patients is called (Green Vibrance). It's a green super food. It has ENZYMES and Probiotic that are very important to your health.
SPB October 19, 2012 at 05:47 PM
Oh, so high alkaline water contains cannabinoids?
old neighbor October 19, 2012 at 05:51 PM
No! What I am saying is smoking the cannabinoids causes more acidity in your body which you do not want. Cancer feeds on acid!
R Barrett October 19, 2012 at 05:58 PM
Also, to keep in mind... my daughter's best friend was diagnosed with leukemia 5 years ago. She had almost of year of chemo/radiation... the cancer came back ... another year of chemo/radiation and the cancer returned again. So, more chemo/radiation and then a bone marrow transplant. Several months ago, they realized her kidneys were losing function from all of that toxic treatment so she is now on a transplant waiting list. Please do everything you can to protect her organs.
SPB October 19, 2012 at 06:02 PM
I was being snarky. When you're facedown in the toilet most of the day you'll take the acidity if it means you'll stop barfing. Besides, the change in PH only comes from inhaling the CO2 in the smoke, not from eating it in a baked good... though baked goods take 30 minutes to kick in, smoking takes less than 5 minutes.
old neighbor October 19, 2012 at 06:16 PM
I have a friend that has been going through chemo. She drinks the high alkiline water, juices and drinks the enzyeme green super food supplement. she no longer feels like throwing up. Just fatigue! She drinks the alkiline water during her chemo treatments.(over a half gallon)
Cancer Sucks October 19, 2012 at 08:40 PM
I found several of these articles when you use google but every time you try and open those sites it says it is not available to read or is no longer on that site... This tells you that "SOMEONE" is trying to cover something up within our communities (Temecula, Murrieta, Wildomar).. Search Results Contamination issue for small SoCal water ... - North County Times m.nctimes.com/...small...water-company/article_b410f379-39b0-59f... 5 hours ago. Authorities may take over a private water company that's supplying contaminated water to Riverside County homes. The Riverside Press-Enterprise ...
Andy October 20, 2012 at 02:05 AM
Cancer does not feed on cannabinoids though... cannabinoids are anti-cancerous agents. You are correct though about smoking too much. However, in this day and age, the problems from "smoking" are easily avoided. Medical cannabis extracts do not contain nearly the same amount of plant matter or tars that regular medical cannabis flowers do. Patients also have the option to vaporize, instead of smoke the medical cannabis so they also avoid combusting any plant material while inhaling what's necessary. Inhaling is necessary for patients who are very nauseous and can't consume edible forms of medical cannabis and / or need "immediate relief". The edible forms won't significantly lower pH, as they contrain only cannabinoids, that closely mimic your body's own endocannabinoids. The edible form is what contains the more "potent, longer lasting" effects that deliver the full spectrum of cannabinoids across the body, possibly having anti-cancerous effects, unlike inhalation. Remember too, not ALL acids are bad, many are absolutely necessary for our survival. The goal is to increase pH while maintaining a very healthy balanced diet. Some items in this diet may be acidic, yet contain enough alkaline foods to keep overall pH "basic". The problems start when our pH becomes very low / ultra acidic from consuming too much junk. Maintaining a close to neutral pH level is ideal in everybody. Ideal is 7.4, slightly "basic". Below 6.8 "acidity" and greater than 7.8 "alkaline" becomes dangerous.
old neighbor October 20, 2012 at 02:38 AM
Hey Andy, This old neighbor doesn't know anything about eating cannabis. I have heard all it does is put a bandaid on the pain. Have you heard of Kangen Water by Enagic? If you live in the area you can try it free. Go to enagic.com and check out the company. I have personally seen peoples bodies heal themselves. (cancer, diabetes, acid reflex, cron's dieases and more...) God has created amazing bodies that can heal themselves!
sheri lysiak October 20, 2012 at 04:21 AM
She is having her 3rd surgery in the morning.. Thanks again for the info. My husband and I plan on doing everything we can and all of your tips are very helpful..I will contact some of you next week when I am more able to focus for any questions I have.please think good thoughts for her in the morning.
Andy October 20, 2012 at 09:05 AM
@old neighbor : I have not heard of Enagic, but I have heard of similar brands. Thank you for this link. With all the problems and contamination in tap water (radioactive isotopes sometimes : http://www.kens5.com/news/Radiation-in-Houstons-tap-water-long-history-of-contamination-108401944.html ) as well as other sources it is a good thing to share products like this. Back to the subject of edibles, edible medical cannabis contains the full spectrum profile of cannabinoids in cannabis unlike inhaled cannabis. Too many beneficial cannabinoids are destroyed in combustion and the cannabinoids aren't distributed in the body as well when you inhale it compared to eating it. The liver also metabolizes the compounds differently. A cancer patient typically consumes about 2 oz medical cannabis extract or 1 lb medical cannabis flowers in edibles over a 2-3 month period for anti-cancerous effects. Typically, a person would start at lower doses then adjust to higher doses for "tolerance" reasons. As far as the science on its effects against cancer, the links I posted in my first comment are helpful, as well as these. The science is overwhelming now : http://www.squidoo.com/hemp-oil-cancer-cure http://www.cancer.gov/cancertopics/pdq/cam/cannabis/healthprofessional/page4 http://www.huffingtonpost.com/2012/09/19/marijuana-and-cancer_n_1898208.html http://www.youtube.com/watch?v=0tghUh4ubbg
old neighbor October 21, 2012 at 01:13 AM
I will be prayer for her and your whole family!!!! God's Blessings!!!!!
sheri lysiak October 21, 2012 at 07:35 AM
Okay she is out and doing good. She has hooks and screws in her spine and will need to wear a back brace for up to 3 months..she should be home in a month which means it will be 2 months that she has been here,
Andy October 22, 2012 at 11:57 PM
Wish you, your family, and your daughter the best during this difficult time.

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